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Preparing for Visitors when You Have a Chronic Illness

Anyone with a chronic illness can tell you that they are likely most comfortable in their home while maintaining some sort of routine. When life events interrupt those routines, symptoms of chronic illness can become heightened. Although some of these routine interruptions are unwelcome and unavoidable (such as hospitalizations or doctor visits), many are conscious… Continue reading Preparing for Visitors when You Have a Chronic Illness

Advocacy, Disability, Invisible Illness, mobility aids

Stop The Stigma: People with Invisible Illnesses Are NOT Fakers

I recently read an article titled "Airporky: Lazy passengers are FAKING disability to get a wheelchair at airports and speed through security queues" written by Carolyn McGuire published in The Sun, a UK magazine. This article makes reference to individuals using wheelchairs at airlines in order to skip the long boarding process and other inconveniences… Continue reading Stop The Stigma: People with Invisible Illnesses Are NOT Fakers

Disability

Why People Become Outraged when Media Misrepresents their Illness

Recently I have read multiple stories on personal blog posts and The Mighty about people being offended by television or movie misrepresentation of their illnesses. Why do people become so angry about such things? Personally, I don’t get upset when television sitcoms make fun of or misrepresent an illness such as when ABC’s “American Housewife”… Continue reading Why People Become Outraged when Media Misrepresents their Illness

Disability

My Experience With Accessibility at The Indiana Medical History Museum 

I was invited by a friend recently to an event called Frankenfest held by Indiana Humanities at the Indiana Medical History Museum located in Indianapolis, Indiana. I contacted the organizer of the event to determine if it was accessible, and I was told that the museum itself does not have accessible access to the second… Continue reading My Experience With Accessibility at The Indiana Medical History Museum 

Disability

A Wheelchair Sign Doesn’t Automatically Make It Accessible

Does anyone see a problem with this picture? We have a problem in America with people not understanding what it means to be truly accessible. As a wheelchair user, I run into situations such as this regularly. Whether it is an "accessible" toilet stall that doesn't even fit my wheelchair, lack of appropriate handicap parking,… Continue reading A Wheelchair Sign Doesn’t Automatically Make It Accessible

Disability

With Chronic Illness, The Diagnosis is Only the Beginning

When you are living with debilitating symptoms that nobody can seem to diagnose, all you wish for is an accurate diagnosis. I remember the years I spent thinking, "If I could just get a correct diagnosis everything would be fine." Well, I'm here to tell you I was wrong. The diagnosis is only the beginning.… Continue reading With Chronic Illness, The Diagnosis is Only the Beginning