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Disability

Why People Become Outraged when Media Misrepresents their Illness

Recently I have read multiple stories on personal blog posts and The Mighty about people being offended by television or movie misrepresentation of their illnesses. Why do people become so angry about such things? Personally, I don’t get upset when television sitcoms make fun of or misrepresent an illness such as when ABC’s “American Housewife”… Continue reading Why People Become Outraged when Media Misrepresents their Illness

Disability

My Experience With Accessibility at The Indiana Medical History Museum 

I was invited by a friend recently to an event called Frankenfest held by Indiana Humanities at the Indiana Medical History Museum located in Indianapolis, Indiana. I contacted the organizer of the event to determine if it was accessible, and I was told that the museum itself does not have accessible access to the second… Continue reading My Experience With Accessibility at The Indiana Medical History Museum 

Disability

A Wheelchair Sign Doesn’t Automatically Make It Accessible

Does anyone see a problem with this picture? We have a problem in America with people not understanding what it means to be truly accessible. As a wheelchair user, I run into situations such as this regularly. Whether it is an "accessible" toilet stall that doesn't even fit my wheelchair, lack of appropriate handicap parking,… Continue reading A Wheelchair Sign Doesn’t Automatically Make It Accessible

Disability

With Chronic Illness, The Diagnosis is Only the Beginning

When you are living with debilitating symptoms that nobody can seem to diagnose, all you wish for is an accurate diagnosis. I remember the years I spent thinking, "If I could just get a correct diagnosis everything would be fine." Well, I'm here to tell you I was wrong. The diagnosis is only the beginning.… Continue reading With Chronic Illness, The Diagnosis is Only the Beginning

Disability

My wheelchair is not a prison!

This is a wonderful post written by Nina Childish! As I sit here anxiously awaiting the arrival of my new power chair I can 100% relate!! Please click on the post below to check out her blog!

nina childish

Since becoming visibly disabled in 2013, after several years in the invisible camp, I have been anxious about seeing people I used to know, and meeting new people. Not just the inevitable “what happened?” (answer: “technically nothing, I was born with this”), but the misguided sympathy I now get for being a wheelchair user. Non-disabled people tend to see the wheelchair as The Worst Thing That Could Ever Happen to someone – look at the terminology used: wheelchair-bound; stuck in a chair; confined to a wheelchair…. but they don’t think of the alternative. Before I had my electric wheelchair, I would leave the house once or twice a week, as it caused me that much pain to walk and the knock on effects weren’t worth it. Now, as long as I’m not in a bad fatigue phase, and can get what passes for “dressed” enough, I can go out multiple…

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