I recently read an article titled "Airporky: Lazy passengers are FAKING disability to get a wheelchair at airports and speed through security queues" written by Carolyn McGuire published in The Sun, a UK magazine. This article makes reference to individuals using wheelchairs at airlines in order to skip the long boarding process and other inconveniences… Continue reading Stop The Stigma: People with Invisible Illnesses Are NOT Fakers
Having trouble navigating the Social Security Disability application process? You’re not alone. Here are some tips I found helpful on my journey.
Sometimes people find it difficult to interact with people using wheelchairs. There are things you just shouldn’t say to someone using assistive devices. Unfortunately, many people do not understand this.
Recently I have read multiple stories on personal blog posts and The Mighty about people being offended by television or movie misrepresentation of their illnesses. Why do people become so angry about such things? Personally, I don’t get upset when television sitcoms make fun of or misrepresent an illness such as when ABC’s “American Housewife”… Continue reading Why People Become Outraged when Media Misrepresents their Illness
I was invited by a friend recently to an event called Frankenfest held by Indiana Humanities at the Indiana Medical History Museum located in Indianapolis, Indiana. I contacted the organizer of the event to determine if it was accessible, and I was told that the museum itself does not have accessible access to the second… Continue reading My Experience With Accessibility at The Indiana Medical History Museum
I was on the phone with my Long Term Disability claims consultant completing a "randomly selected" review of my condition when she asked, "Are you wheelchair bound?" How do I answer that question? My response... "What do you mean by wheelchair bound?" What does anyone mean by "wheelchair bound"? No, I am not bound to… Continue reading Please Don’t Call Me “Wheelchair Bound”
Does anyone see a problem with this picture? We have a problem in America with people not understanding what it means to be truly accessible. As a wheelchair user, I run into situations such as this regularly. Whether it is an "accessible" toilet stall that doesn't even fit my wheelchair, lack of appropriate handicap parking,… Continue reading A Wheelchair Sign Doesn’t Automatically Make It Accessible
When you are living with debilitating symptoms that nobody can seem to diagnose, all you wish for is an accurate diagnosis. I remember the years I spent thinking, "If I could just get a correct diagnosis everything would be fine." Well, I'm here to tell you I was wrong. The diagnosis is only the beginning.… Continue reading With Chronic Illness, The Diagnosis is Only the Beginning
So, it's been a while since I've posted. I've had difficulty obtaining the motivation to write. Do you ever feel that way? You know, the feeling that it doesn't mean anything anymore. The overwhelming lack of purpose. The loss of interest in all activities because you can no longer participate in the activities you previously… Continue reading It’s Been A While
If you could give your younger self any advice, what would it be? A letter to my younger self about what to expect growing up with a rare, undiagnosed, chronic illness, and what to do differently to improve my life.